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ఇదేం తీరు?

పుల్వామా ఉగ్రదాడిలో అమరులైన జవాన్ల సంస్మరణ సభలో కొందరు డబ్బులు వెదజల్లడంపై విమర్శలు వెల్లువెత్తాయి.

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Published : Feb 23, 2019, 3:58 PM IST

ఇదేం తీరు?

నోట్లు వెదజల్లుతున్న కార్యకర్తలు

పుల్వామా ఉగ్రదాడిలో అమరులైన జవాన్లకు నివాళులు అర్పించేందుకు ఉత్తరాఖండ్ రూర్కీలో సంస్మరణ సభ ఏర్పాటుచేశారు. ఈ కార్యక్రమంలో డబ్బులు వెదజల్లారు కాంగ్రెస్ కార్యకర్తలు. ఆ సమయంలో మాజీ సీఎం హరీశ్ రావత్ కుమారుడు వీరేంద్ర రావత్ అక్కడే ఉన్నారు. ఆయనపైనా నోట్లు వెదజల్లారు కాంగ్రెస్ కార్యకర్తలు.

ఇదీ చదవండి:"పోటీల్లో తేడా అదే"

నోట్లు వెదజల్లుతున్న కార్యకర్తలు

పుల్వామా ఉగ్రదాడిలో అమరులైన జవాన్లకు నివాళులు అర్పించేందుకు ఉత్తరాఖండ్ రూర్కీలో సంస్మరణ సభ ఏర్పాటుచేశారు. ఈ కార్యక్రమంలో డబ్బులు వెదజల్లారు కాంగ్రెస్ కార్యకర్తలు. ఆ సమయంలో మాజీ సీఎం హరీశ్ రావత్ కుమారుడు వీరేంద్ర రావత్ అక్కడే ఉన్నారు. ఆయనపైనా నోట్లు వెదజల్లారు కాంగ్రెస్ కార్యకర్తలు.

ఇదీ చదవండి:"పోటీల్లో తేడా అదే"

AUSTRALIA MS RESEARCH
SOURCE: AuBC
RESTRICTIONS: AP Clients Only / No access Australia
LENGTH: 3:12
SHOTLIST:
AuBC
Canberra, Australia – 23 January 2019
1. Various of Vanessa Fanning using a treadmill
2. SOUNDBITE: (English) Vanessa Fanning, patient
"When you're a highly independent person who's strong, fit, healthy, active and whose favourite hobby is bushwalking, horse riding and all of a sudden you can't do those things. It has a huge effect."
3. Various of Fanning meditating
4. Various of Fanning with her husband in the kitchen
5. SOUNDBITE: (English) Vanessa Fanning, patient
"It's a very, very common story that people will say I've had no change in my MRI images for the last ten years, but my condition has changed."
6. Various of Fanning with her husband in the kitchen
7. Low wide angle of sign at the entrance of the Australian National University
8. Various of class at university
9. SOUNDBITE: (English) Dr Jane Desborough, Australian National University (ANU)
"Any tools, or technologies that are developed as a result of our research are relevant to people who have, or are affected by MS."
10. Various of the class
11. SOUNDBITE: (English) Dr Jane Desborough, Australian National University (ANU)
"Funding bodies are now reluctant to fund research that doesn't have people with the particular illness as active researchers in the research teams."
11. Various of Fanning playing the Nintendo Wii at home
12. SOUNDBITE: (English) Vanessa Fanning, patient
"You'd love to think it would halt any progression, it would be even better if it could reverse some of the symptoms, some of the damage that has occurred."
13. Various of Fanning and her husband together on a balcony
LEADIN:
People with multiple sclerosis are being paired with scientists for new research aiming to improve care for patients.
Those taking part in the research are given wearable devices to do tests at home as well as taking part in workshops with researchers.
STORYLINE:
For Vanessa Fanning staying healthy is vital, it gives her more control over her multiple sclerosis (MS).
Fanning was in her mid-forties when she suddenly went numb from the waist down, the impact was devastating.
"When you're a highly independent person who's strong, fit, healthy, active and whose favourite hobby is bushwalking it has a huge effect," says Fanning.
Soon after, she was diagnosed with multiple sclerosis (MS) a disease that affects the central nervous system and consequently most functions of the mind and body.
The exact cause has not been ascertained, but it's believed to be an autoimmune disease, where the immune system turns on the body's own tissues.
In MS the immune system attacks myelin, the fatty protein that covers and protects nerves in the central nervous system. When the myelin is destroyed the nerves are damaged.
Fanning also had other symptoms, since her twenties she'd experienced blurred vision and poor coordination.
She regained some feeling in her lower body, but she's never fully recovered and uses two canes and a mobility scooter to get around.
Fanning has signed up to a study with the Australian National University.
She believes people living with condition are often not consulted by the scientists until much of the research has already been done.
The aim of the study is to break that trend, acknowledging that people with the disease know things about the condition scans can't display.
According to Fanning the need for personalised treatment is important, because the pace of decline differs between people, as does their response to available
medications.
She says: "It's a very, very common story that people will say I've had no change in my MRI images for the last ten years, but my condition has changed."
Leading the research work at the University is Jane Desborough.
She says: "Any tools, or technologies that are developed as a result of our research are relevant to people who have, or are affected by MS."
Desborough's called for the approach to become common practice and says these calls are slowly being answered.
"Funding bodies are now reluctant to fund research that doesn't have people with the particular illness as active researchers in the research teams" she says.
Desborough is still looking for more participants for the nationwide study, which was part of Australia's 'Our Health in Our Hands' initiative.
Fanning finds being part of the research empowering.
The possibility that she might contribute to the improvement of her own, or of other people's futures is what Fanning would like.
"You'd love to think it would halt any progression, it would be even better if it could reverse some of the symptoms, some of the damage that has occurred" says Fanning.
Actually finding a treatment could take many years, scientists around the world are examining a combination of treatments to at least help slow down symptoms.
Patients are playing the long game, and in the meantime they can make personal contributions to efforts to find a way to tackle the disease.
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