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International Albinism Awareness Day 2021: Strength Beyond All Odds

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Published : Jun 13, 2021, 7:01 AM IST

Every year on 13th June, International Albinism Awareness Day is observed to raise awareness about this genetic condition and to highlight the rights of people suffering from Albinism.

low melanin, discolored skin, albino
Different Is Beautiful: Albinism

You must have come across an albino at least once in your life. To understand it in a better way, you must have seen people having white or lighter than normal skin, hair, and eyes. They may not appear normal, but they are a part of society and should be treated with equality.

“It reflects the resilience, perseverance, and achievements of people with albinism in the face of pervasive misconceptions, discrimination, and violence. Despite these obstacles to well-being and security, leaders of organizations representing persons with albinism continue to work hard to support the most vulnerable. I am encouraged that persons with albinism are increasingly taking their rightful place in decision-making platforms around the world”, states the Secretary-General of United Nations (UN), António Guterres.

The theme of this year is “Strength Beyond All Odds". This theme is chosen to:

  • Highlight the achievements of people with albinism around the world.
  • Show that people with albinism can defy all odds.
  • Celebrate how people with albinism worldwide meet and exceed expectations in all domains of life.
  • Encourage everyone during this time of a global pandemic to join the global effort to #BuildBackBetter

According to the UN statistics, it is estimated that in North America and Europe 1 in every 17,000 to 20,000 people have some form of albinism. The condition is much more prevalent in sub-Saharan Africa, with estimates of 1 in 1,400 people being affected in Tanzania and prevalence as high as 1 in 1,000 reported for select populations in Zimbabwe and for other specific ethnic groups in Southern Africa.

What Is Albinism?

Basically, albinism is a rare genetic condition and is inherited from both the parents’ genes, in almost all the types of albinism. Parents may not necessarily have albinism. In this condition, there is a lack of melanin (a pigment) formation in the hair, skin, and eyes. Melanin is essential to determine the color of the aforementioned. Therefore, the lack of this pigment causes little or no color in these parts. Unfortunately, there is no curative treatment for the absence of melanin.

What is more, is that these people are vulnerable to the sun and bright light. This condition is usually associated with vision problems and one may be likely to develop skin cancer as well. These people often face discrimination in society and are marginalized, which is why they need to fight for their rights, so that they be served with equality.

Also Read: Why India Is Low On Condoms Usage.

Is There A Treatment?

There is no cure for albinism. However, precautions can be taken to prevent sun damage and to manage other symptoms.

  • Sunglasses to protect the eyes from the harmful UV rays
  • Sunscreen and full clothes to protect the skin
  • Treating or correcting the vision impairments
  • Avoiding prolonged sun exposure

Besides, regular checkups with an ophthalmologist and skin assessments are required since there is a risk of skin cancer so that the treatment can be done accordingly.

You must have come across an albino at least once in your life. To understand it in a better way, you must have seen people having white or lighter than normal skin, hair, and eyes. They may not appear normal, but they are a part of society and should be treated with equality.

“It reflects the resilience, perseverance, and achievements of people with albinism in the face of pervasive misconceptions, discrimination, and violence. Despite these obstacles to well-being and security, leaders of organizations representing persons with albinism continue to work hard to support the most vulnerable. I am encouraged that persons with albinism are increasingly taking their rightful place in decision-making platforms around the world”, states the Secretary-General of United Nations (UN), António Guterres.

The theme of this year is “Strength Beyond All Odds". This theme is chosen to:

  • Highlight the achievements of people with albinism around the world.
  • Show that people with albinism can defy all odds.
  • Celebrate how people with albinism worldwide meet and exceed expectations in all domains of life.
  • Encourage everyone during this time of a global pandemic to join the global effort to #BuildBackBetter

According to the UN statistics, it is estimated that in North America and Europe 1 in every 17,000 to 20,000 people have some form of albinism. The condition is much more prevalent in sub-Saharan Africa, with estimates of 1 in 1,400 people being affected in Tanzania and prevalence as high as 1 in 1,000 reported for select populations in Zimbabwe and for other specific ethnic groups in Southern Africa.

What Is Albinism?

Basically, albinism is a rare genetic condition and is inherited from both the parents’ genes, in almost all the types of albinism. Parents may not necessarily have albinism. In this condition, there is a lack of melanin (a pigment) formation in the hair, skin, and eyes. Melanin is essential to determine the color of the aforementioned. Therefore, the lack of this pigment causes little or no color in these parts. Unfortunately, there is no curative treatment for the absence of melanin.

What is more, is that these people are vulnerable to the sun and bright light. This condition is usually associated with vision problems and one may be likely to develop skin cancer as well. These people often face discrimination in society and are marginalized, which is why they need to fight for their rights, so that they be served with equality.

Also Read: Why India Is Low On Condoms Usage.

Is There A Treatment?

There is no cure for albinism. However, precautions can be taken to prevent sun damage and to manage other symptoms.

  • Sunglasses to protect the eyes from the harmful UV rays
  • Sunscreen and full clothes to protect the skin
  • Treating or correcting the vision impairments
  • Avoiding prolonged sun exposure

Besides, regular checkups with an ophthalmologist and skin assessments are required since there is a risk of skin cancer so that the treatment can be done accordingly.

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